As a trusted third party, we strengthen the scientific integrity of PROMs registries by involving patients and caregivers.
With the support of l'Assurance Maladie, France Assos Santé, ICHOM and professional organizations.
Improving the relevance of care through governance involving patients and caregivers
PROMs registries offer a solution by measuring outcomes reported directly by patients: quality of life, functional recovery.
These indicators reveal the real value of care beyond traditional clinical indicators.
They enable professionals to benchmark themselves against their peers for continuous improvement, authorities to encourage self-regulation among professionals, and patients to engage directly in assessing the appropriateness of care.
A trusted third party to ensure data integrity
The French College of Patient Outcomes is a non-profit association (law 1901) that creates a space for dialogue between healthcare system users and professional organizations. This dialogue enables the adoption of a common methodology to deploy PROMs registries across territories.
The Scientific Councils it leads collegially define methodologies, validate indicators and supervise audits.
This co-construction ensures that the data produced is reliable, transparent and accepted by all.
Association Governance
The French College of Patient Outcomes is a law 1901 association with three-level governance:
- a Steering Committee that manages projects,
- a Scientific Council that defines the methodology and operational development of each registry,
- a Supervisory Council that ensures compliance and prevents conflicts of interest.
The French College of Patient Outcomes involves healthcare professionals, user and patient representatives as well as healthcare system experts in its governance.
Each governance member maintains an updated public declaration of interests and adheres to a common ethical charter.
This architecture guarantees the independence and collegiality of decisions.
Supervisory Council
Anne-Marie Armanteras
Chair of the Supervisory Council, Patient Outcome Consortium. President of ANAP, former HAS commission chair, former DGOS, former health advisor to the President of the Republic
Prof. Laurent Degos
Founder and first President of HAS
Member of the Academy of Sciences
Prof. Isabelle Durand-Zaleski
Director of the clinical research unit in health economics (APHP)
Former head of HAS evaluation department
Member of ATIH scientific council
Prof. Gabriel Steg
Professor of Cardiology,
Vice-president of APHP board of directors
Gérard Raymond
President, France Assos Santé
Executive Committee
Dr. Jean-Pierre Thierry – DOI
President, Patient Outcome Consortium
Medical Advisor, France Assos Santé
Florent Perin Dureau
Vice-President Patient Outcome Consortium
Former director of neurosciences department at ANSM
Former research director, Foch Hospital
The National Cataract Registry measures the relevance of care through a functional recovery score (PROMs) accessible to practitioners and patients.
The objective is to directly involve the patient in care evaluation and enable each surgeon to continuously improve within a national community of practice.
The Registry uses a methodology validated internationally by the European Society of Cataracts & Refractive Surgeons (ESCRS) and the International Consortium for Health Outcome Measurements, (ICHOM).
Since 2020, the Registry has been deployed in partnership with the National Professional Council of Ophthalmology, SAFIR and with the support of France Assos Santé.
Scientific Council
Prof. Béatrice Cochener – DOI
Department Head, Ophthalmology Service, CHU de Brest
President of the National Professional Council of Ophthalmology
Dr. Vincent Dèdes – DOI
Flandres Ophthalmology Practice,
President, National Union of French Ophthalmologists
Dr. François Lignereux – DOI
Sourdille-Atlantique Ophthalmological Institute
Scientific Council Delegate
Prof. Dominique Monnet – DOI
University Professor, Ophthalmology Service at Cochin Hospital, APHP
President of SAFIR
Dr. Pascal Rozot – DOI
Ophthalmologist, Former President of SAFIR
Prof. Michel Weber – DOI
University Professor, Hospital Practitioner
Ophthalmology Service at CHU de Nantes
Dr. Jean-Pierre Thierry – DOI
President, Patient Outcome Consortium
Medical Advisor, France Assos Santé
Each year in France, nearly 130,000 patients undergo surgery for carpal tunnel syndrome.
The National Carpal Tunnel Registry enables hand surgeons to measure outcomes that matter to their patients — functional recovery (PROMs), relational quality (PREMs), clinical data (CROMs) — and to continuously improve within a national community of practice.
Launched in 2021 with the support of l’Assurance Maladie and France Assos Santé, the Registry aims to mobilize 200 surgeons by the end of 2026.
Scientific Council
Dr. Philippe Bellemère – DOI
Institut de la main santé Atlantique
Former president of SFCM
Scientific Council Delegate
Dr. Camilo Chaves – DOI
Clinique du Pré (Mans)
Member of the European Wrist Arthroscopy Society
Dr. Benjamin Degeorge – DOI
OrthoSud Group
Member of the French Society of Hand Surgery
Prof. Laurent Obert – DOI
Department Head CHU de Besançon
Former President of SFCM
Member of the National Academy of Surgery
Dr. Alexandre Kilinc – DOI
Clinique Jouvenet,
President of the Île-de-France Hand Prevention Network
Dr. Ludovic Ardouin – DOI
Institut de la Main Santé Atlantique
Member of SFCM college
Member of the National Academy of Surgery
Yves Jacob - DOI
President of GEMMES
Patrick Théron - DOI
Vice-President of GEMMES,
Administrator, France Assos Santé
Dr. Jean-Pierre Thierry – DOI
President of the French College of Patient Outcomes,
Medical Advisor, France Assos Santé
The perinatal period is crucial for women’s physical and mental health. However, certain dimensions such as mental health, postpartum incontinence and quality of life remain insufficiently evaluated.
In accordance with ICHOM standards, the National Maternity Registry involves patients and obstetric teams in a dynamic of evaluation and continuous improvement.
Deployed since 2024, it benefits from the support of the French National College of Gynecologists and Obstetricians (CNGOF), the National College of Midwives of France (CNSF), the Inter-associative Collective Around Birth (CIANE) and France Assos Santé.
Scientific Council
Prof. Patrick Rozenberg – DOI
American Hospital of Paris
CNGOF President
Prof. Philippe Deruelle – DOI
PU-PH, CHU Montpellier
President of CNP GOGM
Prof. Corinne Dupont
Vice-dean of midwifery, HCL
Faculty of Medicine, Claude Bernard Lyon 1 University
Prof. Cyril Huissoud – DOI
Department Head, HCL
Secretary General of CNGOF
Prof. Françoise Vendittelli
CHU Clermont-Ferrand Chair of AUDIPOG Scientific Council
Prof. Laurent Gaucher
Geneva School of Health Sciences
Treasurer of the National Council of Midwives
Dr. Olivier Multon – DOI
Private practitioner, Santé Atlantique ELSAN
Vice-president, Treasurer of CNGOF,
Administrator, Gynerisq
Anne Evrard
Co-President of CIANE
Dr. Jean-Pierre Thierry – DOI
President, Patient Outcome Consortium
Medical Advisor, France Assos Santé
The French College of Patient Outcomes is a partner of the International Consortium for Health Outcome Measurements (ICHOM)
The ICHOM accreditation program constitutes an international benchmark that evaluates the quality of PROMs implementation within medical teams. It enables healthcare facilities to validate their level of maturity in implementing a Value-Based Healthcare approach according to international standards.
For more information: jp.thierry@college-resultat-patient.fr
